Duration 10:26

I was having a Baby With DOWN SYNDROME My baby was diagnosed with Down Syndrome At Birth.

by Living With Eve

116 572 watched

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2.9 K

Published 18 Sep 2019

I was having a baby with Down Syndrome! Shocked! Scared! Overwhelmed! These were my feeling when My baby was diagnosed with Down Syndrome at Birth. How would I handle a Special Needs Baby With 3 other kids. How did I do being pregnant with a Down Syndrome Baby? In this video I sit down to tell you the story of when I found out my baby had Down Syndrome or Trisomy 21. You see, we really didn't know that she had this genetic disorder until she was born. So I tell my story so others can understand it, not be afraid of it and fall in love with Naomi just like us. Please subscribe to my Channel: /c/livingwitheve Follow Me On Social Media https://twitter.com/leilaniM101978 https://www.instagram.com/living_with_eve/ DISCLAIMER: I am not a professional doctor or therapist but I am a mom who has access to these resources. I have used these techniques and have brought them to this platform to share with you. If you have any question please contact you physician. Our information is intended to be for guidance and is not a substitute for advice from a physician or any other medical professional. FTC DISCLAIMER: This post may contain affiliate links, and I will be compensated if you make a purchase after clicking on my links. If I partner with a company I will always disclose it here. This video is NOT sponsored ***This video is not made for children 13 and under. The target audience for this video is adults.

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Comments - 555

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@lovebug8482last year Hi guys so I wanted a little perspective if possible. I am 13 weeks pregnant with twins. At the 12-week NT ultrasound they saw that baby B had thick lining behind her neck. We got the nipt blood work done and my doctor said it's 88% chance that one of the babies will have Down syndrome, presumably baby b. However we don't know which one. My doctors are advising that I get an amniocentesis for each baby and I'm so scared and nervous and unsure. They have also talked to me about termination of pregnancy and potentially trying again with IVF. I am 38 years old and I don't know that I can take this emotionally or physically again. I also want to try to keep as positive as possible and I'm just not sure what to do. ... 19
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@kathy73313 years ago My grand daughter has down syndrome. After she was born I cried for days, not for me but my daughter because she is a single mother and I didn't know if she could give this baby what she needed. But she has surprised me and has done much better than I thought! She has been so strong ( much stronger than I was).This precious baby has awoken so many things in me that I didn't know I had! Lilyana is the best thing that could have happened to our family! I know I shouldn't have favorites but I think I have a little more love for her because of all the joy that she has given to all of us she made us realize that you can tackle anything that life has to give!! ... 72
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@angier6445 days ago Totally agree with everything you said and went through. You and your daughter and your family are a blessing for this world.
I am a carer of my Downs neice and know first hand what a special blessing she is directly from heaven. I thank God every day for the gift and privilege. God bless.❤ ... 1
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@creatingcommunity70225 years ago Leilani, what a wonderful story. Thank you so much for being so open. What a blessing your beautiful little girl is. Much love 💖🤗 6
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@ourthriftyhomeschool4 years ago I love hearing your story! This was wonderful! ❤ 4
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@Blessedbears3 years ago Awe, she’s beautiful! I’m so glad you shared this! What a blessing! 2
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@Shhhhhhh283 years ago I just love how transparent your are! Thanks for sharing your story… God bless your family! 💜 1
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@angelbasham66313 years ago Naomi is beautiful ❤I'm 39 pregnant with no 7 I'm due july 3 2021 I told the doctors I didnt want any testing that no matter what I would have my baby I had my anatomy scan last appt they should go over it with me next week I know that no matter what I will love my child god doesnt make mistakes stay blessed ... 69
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@annbyrd21963 years ago Your baby is beautiful ❤️. She is blessed to have you as a mom and your family is precious ❤️. I'm glad you have each other! 2
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@Saranita79last year She is absolutely beautiful, I love how much you love her and how proud and thankful you are of and for her. Your truly a inspiration for other parents going through the same situation. ❤ 5
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@FieldsFullHouse5 years ago Leilani... you had me crying during your FB post. This is a beautiful video! Naomi is a blessing and will touch many people! 7
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@TheCookingChronicleswithIngrid4 years ago Oh my thank you Leilani for sharing your story! Naomi has a purpose she is so beautiful! God is good! 7
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@loriwelsh10103 years ago She is so cute and looks like she has such a bubbly personality, god bless the whole family. 17
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@sharonh29912 years ago OMG what a great message you posted to friends on invited everyone to love her and congratulated them on this new love they’ll soon be enjoying in their lives. 3
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@thehudsonshub2 years ago Leilani, this is an encouraging video and Naomi is so beautiful. She is blessed to have parents like you! 3
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@HaiandTerrie4 years ago We love your channel. We are looking into homeschooling and you have been such a blessing and inspiration to us. You are a warrior mom.❤️ 2
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@marenawhite3322last year So happy you kept your little girl and live who she is. My Grandmother worked in an institution for Down Syndrome kids. Many babies were brought there only to be abandoned and forgotten. She told us many stories of the neglect and misunderstanding and most were very sad.
🦋👏🥰 ... 3
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@oneperson5760last year My uncle was DS and he was the heart and humor and joy of our family. He was a blessing to all of us and he remnded us what was really important in life. Enjoy your girl! She looks happy. Be happy with her. 2
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@teresawilliams3664 years ago My beautiful Niece is a downs baby ..Drs said she wouldn't live past 20 & she is now 43! She is an Angel on earth, so much unconditional love and she lights up the room..Loved your story she is beautiful!! 27
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@irenescites91282 years ago Your daughter is so beautiful. We have a little granddaughter who has Down syndrome. She is now 5 and is our greatest joy. I thank God for her and all the joy she brings everyday. Thank you for sharing your experience. 9
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@perfectpikelet14443 years ago She is absolutely gorgeous. Thank you for sharing your precious little angel with us. XX 3
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@natlim67094 years ago Your testimony is amazing and the way you handle it are so open ❤️ may ADONAI bless you and keep your family 🙏🏼 3
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@mamabritteni54115 years ago New sub! ❤️ I adored your honesty throughout this video, especially with sharing your thoughts on briefly considering abortion and the story of what happened with your aunt when you were a child. What a beautiful baby! She's very lucky to have you as a mama! ... 15
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@dawnmerlino54912 months ago I too was 38. Pregnant with an unplanned totally miracle baby. My husband had been advised he was sterile due to a verified medical condition. At my 20 week scan it was determined my baby had downs. I was asked to do an amniocentesis which I refused. I was then sent to an expert in Pennsylvania who could tell you with certainty whether your baby was a downs baby. This doctor was very through. The scan lasted close to an hour. He looked at the neck for thickness. Measured femur for length. Many other things. He looked at my husband who is short and stocky. He gave us a diagnosis of 50/50. We had decided previously no matter what we were having this little boy. At his birth there was a rather quick moment where nobody was in the room but my husband and I. Midwife had went to dinner thinking it would be several more husband delivered his son. What a moment that was. Our baby didn't cry he just looked up at his father. I managed to hit the call button and a nurse arrived and ran out to get our midwife. Before we cut the cord she looked at my baby's hands. Apparently downs babies do not have lines on their palms at first..We had never heard of this but there were lines on his little palms and so he was not downs. Hes 26 now and although I've told him his story I don't believe he understands what a miracle he is. As of now I know several couples who have been blessed with a baby with downs and they are the light of their lives. My first child was born with cerebral palsy and hearing impaired so I know how much love and commitment it takes to raise a child with disabilities. I believe only really special parents are chosen. Your story touched my heart and brought back all my many feelings during my own uncertainty. Your little one is a beautiful child. ❤ ... 2
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@tayloralmendinger58065 years ago Love how honest and informative the you are. Those kids of yours are so loved 🌟 4
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@TaTayFam5 years ago This is such an emotional but beautiful story! Your daughter is such a blessing 💜 Thank you for sharing this with us! 19
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@marywilliams53552 years ago Yes, you definitely are blessed with your beautiful Naomi, however Naomi is blessed to have come into this world with such a loving strong family. May God bless and give y’all continuing strength throughout this amazing journey.💕💕💕💕💕 ... 3
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@hixxyted12442 years ago You can't get a more loving caring friendly person than someone with ds!! They are so loving 3
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@somersetflower3 years ago What a truly beautiful little girl x
Lucky family to be blessed with this little miracle.
And lucky tiny miracle to be blessed with such a loving family .
xx Jan UK xx 4
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@whatgwenloves4 years ago I just stumbled across this video somehow and I am so happy. My son is 5 months old and he has down syndrome as well as a life-limiting heart defect. He already had one surgery and will require at least one more this year. The love a momma feels for her child with special needs is unlike any other love in this world. I love my typically developing daughter so crazy much but the love I feel for my son with down syndrome is different. It's hard to explain but if you get lucky enough to have a baby with special needs you'll understand. Thanks for sharing your sweet baby girl. It's so important. ... 35
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@lindahennen56212 years ago Your daughter is precious , she is meant to be a part of your family. 8
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@deezkneechannel5 years ago I've had some very good friends with Downs and these guys and girls are amazing, and you and your family are also so amazing. Thank you for sharing! 14
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@amyhatfield53892 years ago Thank you so much. I had our son at 39. I wasn't afraid of DS. I was raised with a family that volunteered with people with disabilities etc and so I knew... and I know your family truly IS blessed. Not just by God or Naomi but because of having YOU as a mommy.
My son was born with the "normal" number of finger and toes and chromosomes but had he not, I only hope I would have handled it with such grace.
I love you ... 7
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@EmsBookNookMI5 years ago What a beautiful testimony and a gorgeous girl. Your story brought back many memories and emotions for me as we walked through our first few weeks with our youngest daughter. She has Treacher Collins Syndrome, so much of what she goes through is different, but there are many similar social hurdles and lots of doctor visits and surgeries for her to endure as well. I agree with you 100%....we are so blessed to be the parents of such special children who will bring endless love, growth, and joy to our lives. Thanks so much for sharing. I'm so glad to know your story. 💗 ... 2
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@LargeFamilyHomesteaders5 years ago I'm encouraged by your response to this situation. Your daughter is beautiful! 16
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@EverydayBlessings5 years ago This is so beautiful! As a mother To a daughter with a plethora of health conditions I absolutely connect with your post! You’re so blessed! 4
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@tracylayne99183 years ago Such a beautiful story! Naomi is precious! 1
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@jessicaduffield18992 years ago Love this. I never felt uncomfortable with any special needs person. Just highly protective. I don't have any special needs close ppl to me. But I absolutely love and respect each person! God bless your family! May God bless Naomi with many wonderful kind people in her life. May God use her just as I pray he uses me for his good! ... 1
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@BabsLongfellow2 years ago The beauty of your birth announcement via Facebook was profound and glorious. Thank-you. 2
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@yourenough32 years ago Naomi is beautiful. 💜💜 All your children are a blessing ❤️ 3
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@staceyr35343 years ago This is beautiful. Naomi is so precious. 3
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@ApprendreSansEcolelast year Wow, that was a beautiful message that you posted on Facebook ! How you found those perfect words as you only has one day to process -they have to have been inspired ! What a powerful testimony, thank you for sharing it. 2
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@schindel63073 years ago She is beautiful. Thank you so much for sharing her birth story and for promoting life. She looks like pure Sunshine! 🌞
Shabbat shalom 1
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@sabrinavargas73683 years ago I loved the ended how you said not to be afraid of her or to interact with her. My family sometimes doesn't know how to interact with my son 1
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@itzjnina5 years ago Thanks for sharing your story with us, she is such a precious child, heaven sent! ❤️❤️❤️ 3
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@RobinWilson-rn6hwlast year Thank you for making the decision to keep that beautiful baby 3
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@TaNeishaKemp5 years ago Such an awesome testimony! Sharing this will encourage others who are also dealing with this surprise blessing. 8
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@RussellsLovingLife5 years ago I have a brother with special needs and he has blessed our lives in so many way! Thanks for sharing your story and letting people know that children/people with special needs are a blessing from God. They are different, but that is not a bad or sad thing. God made us all different! 😊 ... 4
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@PenniesAndSalt5 years ago What a blessing to have such a precious friend to help you walk this road and process everything. She is absolutely beautiful and precious ❤️ this totally brought tears to my eyes. That smile 😍😍😍 2
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@S7Touring5 years ago I'm so sad for your Aunt and Uncle. So many people regret those decisions. You a truly a wonderful person for welcoming your daughter into your life. I think you should definitely share as much as possible about the unique issues you've had to go through. You never know who you will bless with your story. ... 5
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@ohmyjanah3 years ago THIS IS AN INCREDIBLE STORY! YOU ARE SUCH A GREAT MOM YOU DESERVE THE WORLD!! STAY STRONG AND HEALTHY TOGETHER WITH YOU CHILD🥰✨ LOVE THIS STORY! 5
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@TheReef1222 years ago I also have a child with Down syndrome his mother left him after birth and I’ve been raising him on my own since then he’s a perfect little boy I can’t imagine my life without him god bless you 10
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@raquelperezzbornik551last year OMG!! She is adorable, a beautiful addition to your beautiful family!!! 2
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@AnotherHouseWife5 years ago This is beautiful video about a beautiful baby 😘🙏🏻. I love how you made me feel like i was there, you told the story perfectly. Thank you for sharing and God bless your family. 2
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@allisonward66213 years ago She truly is a cutie! What a blessing and thanks for sharing. 1
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@becskoff5 years ago Beautiful video Leilani!! thank you for sharing. 2
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@amandatorres80004 years ago Thank you for sharing your story . Your post about your daughter is beautiful. She is beautiful 💕 2
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@khard3r2 years ago I'm crying on the post you wrote. God bless you and your family!!!! 1
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@chucitachirimoya10862 years ago You are an amazing mom. Everyone is fine. All the love 💕 1
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@atwinkleintheireyes3 years ago Wow what a start to your story at 14, I love how you see your daughter as a gift and how you know that the Lord is going to use her to bring joy, I just subscribed to your channel I’m so enjoying my your videos 🙏🏾 2
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@georgiagirl2871last year What a blessing from God! Blessing like little Noami show us how to be caring and compassionate as our Lord was caring and compassionate to us! 2
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@FANDOMversity5 years ago Bless you hon. What a beautiful girl you have. What a wonderful mother she has been given. 3
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@marlah.75113 years ago I love how you accepted and loved and valued your daughter from the beginning, and encouraged your community to do the same. I know she is a blessing.
I know. 45
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@cassiahunt54053 years ago I am expecting a baby in a few weeks who has screened positive for DS. I know that I have not fully accepted it emotionally, even though I know, in my head, that it’s happening.
I am scared and sad.
I am scared for his future. I am scared that there is something wrong that the doctors can’t see and that we will lose him. I am scared to tell people that he has Down Syndrome because people are unkind.
And I am sad that I feel all of these fears.
I hope I can do this. I’m so glad I found your video tonight, because I needed to hear how blessed we really are.
Thank you for posting this. ... 14
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@anamaria-zo5ym2 years ago You're a blessed mom so is your beautiful daughter a gift ❤ she's a precious gift . 1
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@evil_juggalo_10143 years ago I just love the way you love your baby, how you kept her after she was diagnosed with Downs- Syndrom, She is so beautiful, I Bless you with lots of Guardian Angels and God, you are The Best Mom in the world and a woman like you for I'm that Mother too! Peace and Lot's of Love, Miss Sandra ... 1
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@josebarboza48754 years ago This is a incredible video. I loved it. God bless. 4
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@mariacperez-fondon5433 years ago You have a little princess right there. God bless your family. 🤩 1
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@perkypegasus10723 years ago You are a blessing to this world. Thank you for your content. Thank you for your heart for your passion and divine guidance to take on and share all that you do and are part of. God bless you and your family always. I don't know you, but I love you. Keep up the great work. You are beyond amazing. You are a super hero in my eyes. 🏆🥇🦸‍♀️ ... 1
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@UncleCharlie5 years ago Awesome video! I know this took a lot of courage for you to make, but I am so glad you did! God is going to use this video to connect you not only to people who will love and support you and your precious family, but for other families who desperately need to hear this. You will bless and be blessed! You are so right, that she paints your family and those who come into contact with her with such beautiful colors. She will inspire many, bless many, and bring out the best in many more! She is Valued By God!!! ... 2
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@amybrock98403 years ago What a beautiful baby ! She is so precious! 2
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@OurExtraGift4 years ago I just found your channel and this was the first ever video that I've watched from you and I'm in tears! I feel like I've just found a friend! We have many things in common, we are believers and also have a beautiful daughter with Down Syndrome. We have two boys 7 & 5, and our sweet girl is 2 years old. We also have a YouTube channel and have been sharing this blessing and journey that God has chosen for our family in hopes that it will encourage others that have received this diagnosis. ❤️ I'm looking forward to watching more of your videos!! 🥰 ... 2
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@sarahguin62774 years ago She's so beautiful🙏 love is powerful 5
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@Zaepiclast year Naomi Eve is sooo beautiful and adorable❤ truly enjoy seeing her! Thank you for sharing it🤍 1
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@EricaLucasLoves5 years ago I've watched this so many times now, and I cry with joyful tears each time. Your words about your daughter make me so happy. 28
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@vanessagreen98543 years ago My story it’s pretty similar to you except we had a boy and funny your daughter has my other daughter’s bday. He is 4 months now. We are truly blessed. Thank you for sharing! 💕 4
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@re-joyce48064 years ago Thankyou so much for sharing your beautiful family and with such honesty inspiration love and devotion as a mom, Eve is absolutely beautiful a very special gift indeed, may God richly Bless each of you, Much love x 2
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@litaj.encarnacion74823 years ago Mothers will never turn their backs on her child regardless of their defect.your baby is Super Special.Gods gift why not .i love Naomi!!! 8
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@mayradiymore3073 years ago Your baby is adorable 🥰 God bless your family 💖 1
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@WanderlustBeautyDreams4 years ago Thanks for sharing your wonderful story, so beautiful! 2
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@sukoluhletebogo13315 years ago Thank you for sharing this beautiful story with us.I remember one relative of mine after telling them my daughter has Down Syndrome saying to me " I hope you don't hate that child" I said "hate her" why would I hate my own child,you love your child the day you find out you are pregnant and love them more the moment you hold them in your arms.she turned 2 in August and she is such a happy, naughty girl.she keeps me on my feet all day!!! ... 3
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@CrocPit2 years ago What a gorgeous little baby! Love her smile 🤗 3
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@shirleymcbride23204 years ago Aww she is so adorable and cute lil babygirl. God has Blessed this family with a very special baby.🤗😊🙏 1
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@Lionforadaylast year This video was very affecting for me. Thank-you for challenging me - and everyone else - to adjust the lens through which we view others and our crazy, beautiful, unpredictable world. 1
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@simplejoyfilledliving5 years ago This was such a powerful video! Your daughter is beautiful! We adopted Sophie from China knowing that she had special needs but not the extent of her special needs. I can’t imagine how shocking it would be to find out when a child is born. I love what you said about your daughter being a blessing. Sophie is a tremendous blessing and I know God has a purpose for her life. When she was only 4 and just learning to speak, she would sit in the buggy at Target and tell strangers “Jejus love you!”. ... 18
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@wearethereeves8685last month This is beautiful ❤️ SHE is a beautiful miracle ❤❤❤ 1
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@KasperlundGretel5 years ago thank you for sharing your story and helping so many people with it :-) 2
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@HotchStuff3 years ago I watched your channel before my grand Daughter Eden was born Aug. 7, 2020. I grew up with a Down Syndrome little boy on my block in Los Angeles in the early 60's. My mother brought us up to look at everyone the same and we did. Back in 1990's I had the privilege to help host a Biker event called the Beach Ride. It was for the Exceptional children's foundation in LA. So when my grand daughter was born, I too feel it is a blessing. She has two older sister that just love her, and my (step)daughter is so wonderful with her. She has been lucky to not have too many health challenges yet, but knowing what might be, we are ready to all deal with it and love her to pieces. Thank you again for sharing your family with us. Hugs from Reno NV ... 1
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@himanshi2talk3 years ago My sister's down syndrome also went undetected during my mom's ultrasounds. Even when she was born, noone from the hospital addressed that she had downs. My parents kept wondering how she looked different features wise. However, we got to know about her condition after 15 days when she had some issues and we rushed her to the hospital. In india, back in 1995 down syndrome wasn't really heard of and we didn't have access to the internet to learn so much. My sister is the cutest thing in the world . I love her alot and she is one disciplined and adorable kid. I am happy to see you raise your daughter so well . God bless you guys !! ... 14
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@joelpayne11932 years ago May God bless you and your daughter and I think that you are strong, brave and caring for your family 👪 1
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@OfSparrowsButterflies5 years ago Thank you for being brave and share this. 2
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@OurHomeschoolCastle3 years ago Oh Leilani 💜💜💜 this video touched my heart and the tears are flowing! Such a beautiful baby girl 💜💜💜 No one knows what it’s like to have a special needs child until they have one in their lives 💜💜💜 4
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@PhillipsFamBabyJourney5 years ago I love how you handled introducing the baby to her siblings. She is beautiful. We almost named our baby Naomi. 33
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@alicewills7677last year Oh my? As a sibling of a down syndrome I can tell you what a blessing it will be! I learned what the true meaning of love
And all it encompasses
The world through his eyes was a place that saw only love and joy for simple things. We were raised only to see him as the blessing he was! We lost him in 2009. I miss him so much! You're children will learn these beautiful things also
God bless? ... 4
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@Mike_444 years ago Not going to lie.. I cried of joy watching this. Once a parent, life totally changes in a great way. May God always bless and bring good health your daughter, she truly is a blessing in your life.. 6